2024-10-28 07:07
I feel it important to introduce myself properly on this platform.
I’m Mui and I have an incredibly rare genetic skin disorder called Harlequin Ichthyosis. I was not burned. I was born this way. I’m not in any pain. Currently ranking in as 4th oldest currently known to be living with it.
Born and raised in Hong Kong, I am also adopted so, a great mix of everything. Loves wellness, sport and hopefully being a good human.
Any questions, add them below and I’ll do what I can. 👌