I heard about this idea on an EDS podcast and it stuck with me because it’s the only policy change I’ve ever heard of that would help even the most severe chronic illness patients. This doctor being interviewed calls herself a ‘multi-systemic disease’ specialist. Her process is to spend many hours on the first visit (I think like 10 total, like you spend a day or 2 with her and her team). This is the only way that she’s found that she can actually get to the bottom of multisystemic 👇 1/?

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2024-12-28 12:36

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Shani Shani
shani991735

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5 分鐘內	Shani Shani shani991735	…diseases and actually changed the person’s life around. I believe that we actually do have enough medical knowledge to effectively treat many debilitated, bed bound patients of the multi systemic variety. The obstacle to actually doing this, is the fragmentation of the medical system. You never get looked at multi-systemically, and there’s so much data that gets lost because of that. Other issues are when you become the ‘hot potato’ - 👇2/7
2 小時內	Brandy Schantz chroniclly_brandyschantz	This is how I was finally diagnosed with dysautonomia. I had a 4 hour appointment where we went over my childhood, my time as an Army officer and each duty station and deployment, my history with Crohn’s disease, a mountain of tests I’ve had over the last 4 years, and about 10 years worth of Garmin data. The doctor was very interested in my Crohn’s history because of what he called the link between the gut and the brain.